Learning to become fluent with words that accurately describe the pain and symptoms you are feeling is one of the most helpful things you can do to create a positive working relationship and understanding between yourself and your medical professionals.
We have all been in that place where something awful happens to someone and we are petrified of saying the wrong thing or not sure how to help. This is where the book ‘There Is No Good Card For This: What to Say and Do When Life is Scary, Awful and Unfair to People You Love’ by Emily McDowell and Kelsey Crowe comes in to save us!
I hope you have people and places where you don’t have to be strong too.
As soon as things get tough, you know you are going to need a few people to lean on. Who is on your team?
One thing I am constantly being asked is ‘what do I do all day if I am not working?’. Here is a little insight into my daily life and health management.
So you might not be much of a talker or know much about the medical world, but you want to help someone close to you? Here are a few practical ways to help someone with a chronic condition!
When chronic conditions start to infiltrate every part of your life, you can feel like you are losing control or have others make all the choices for you. This series is about regaining a bit of control in areas that are manageable and make a huge difference – starting with the online world! Read about how I changed my online experience from taking me for a ride to taking the wheel!
Most of the time we don’t even realise that we are holding our breath when we are in pain. So when we are in the moment of pain and waiting for it to pass or ease, here are some neat little breathing meditation practices to try to relax our bodies.
We all need our little anchors to keep up grounded and uplifted when the seas and skies are stormy.
Anyone with a chronic condition can tell you that going to celebrations or large events can be quite challenging and exhausting. With some careful planning and sensible self care, we can make the event much more enjoyable and last longer than Cinderella before the carriage turns into a pumpkin!
I have learnt that time and expectations are two very dangerous things to try to predict and manage. Now we are all learning that with COVID-19 too.
I’ve had a lot of medical appointments over the years and I have learnt a few tips from my experiences and from the medical practitioners and their staff.
Being in pain or managing a chronic condition while also having an external crisis play out in front of you, can really add to the stress and therefore the symptoms that you manage. From my own experiences, here are my suggestions for managing both a chronic condition and an external crisis.
We never know when something could go wrong or we need additional help, and the best way to manage this is to be prepared and have a plan. Here are my tips to cover all bases!
Nurturing ourselves with familiar and enriching activities that restore our energy is what keeps us afloat when everything around us is uncertain, rough and stormy.
Once we have taken care of the immediate issues, diving into medical investigations can make it hard to work out if you are making progress.
The pharmacist is probably going to be a frequent person you’ll see when managing a medical condition, so it is reassuring to get to know them and their services.
How do we navigate it?
How do we understand it?
How do we explain it?
How do we accept it?
With a little experimenting, rituals and preparation, you can master quality rest time.
We all just want to be seen and heard for how we really are.
Clothes help us to transition into different states of being and doing, and can transform your mindset and mood in an instant.
Don’t wait and miss the opportunity for a quality rest break.
One of the most transformative things that I have implemented in my medical journey was to start a daily diary.
Self care that make us feel good and nurtured for our long term wellness.
As the saying goes, you can’t pour from an empty cup.
If you have ever experienced a crisis, a medical condition, a major change or been impacted by the current COVID-19 situation, you may probably have noticed the secondary effect of a level of uncertainty and discomfort. I wish I could wave a magic wand and help it disappear for you. Instead I have hard truths and some hard work to practice, which is well worth the effort for your mental and emotional well-being and for those around you.
Take heart, you will be ok.
We are all going through a time of big change.
I have wanted to support the chronic medical conditions community for some time and highlight the accomplishments and challenges that come with managing chronic conditions and the lifestyle that usually comes with a new normal.
Hello there, I’m Hannah. Let me introduce myself.