The time has come for me to press pause on the blog and take some time out to recharge my creative batteries.
Leave your heart to wander…
Growing Up Disabled in Australia is a diverse anthology of the very best kind!
The treasure I was being directed to
There have been a few things that I predicted, a few surprises along the way and a whole lot of learning.
An ability to entertain the uncomfortable.
It sometimes feels like we have nothing left to give, and yet…
A few words on driving, medical conditions and compromises.
May 12th is International Awareness Day for Chronic Immunological and Neurological Diseases (CIND) so here are a few words today in honour of the Lady with the Lamp.
In the second instalment of Take Control Of What You Can Series, I’m talking about regaining control of an environment to make you feel happier, healthier and safer.
Lest We Forget
To clear your path.
Learning to become fluent with words that accurately describe the pain and symptoms you are feeling is one of the most helpful things you can do to create a positive working relationship and understanding between yourself and your medical professionals.
What remains? Nature.
I hope you have people and places where you don’t have to be strong too.
There is something to be said for timing and usually we only see that something happens at the perfect time if it involves an obvious change or lesson, but even the things that we seek comfort from can come to us at the right time.
As soon as things get tough, you know you are going to need a few people to lean on. Who is on your team?
Guard well your spare moments…
This is the time to be slow
Do not be afraid of your difficulties.
When chronic conditions start to infiltrate every part of your life, you can feel like you are losing control or have others make all the choices for you. This series is about regaining a bit of control in areas that are manageable and make a huge difference – starting with the online world! Read about how I changed my online experience from taking me for a ride to taking the wheel!
Not the flower.
For a seed to achieve its greatest expression, it must come completely undone.
My journey with meditation had a lot of false starts and it was definitely a skill that once I started with the right intentions and reasons, I haven’t stopped and it has become the most valuable practice in my life. Read more about my meditation journey here:
For last year’s words belong to last year’s language.
I started the year with ideas and dreams for a project – but the year had other plans for me and my project.
It’s pretty hard to look back on a disappointing year, when nothing went your way and felt like a struggle to get through. From my experience from many tough years, here are a few things to keep in mind when reviewing the year.
Depends on our dispositions
Matt Haig is a brilliant writer and human being who is constantly investigating and questioning the effect of modern life on our mental health. He is a huge advocate for mental health wellness, and has shared his experiences through his multiple fiction works and his non-fiction books.
When I am among the trees
This is the power of gathering:
Look on each day that comes as a challenge, as a test of courage.
So often we can fall into the trap of assuming that someone is naturally gifted with skills, habits and traits. But what if they weren’t born like that and worked hard to be that person?
I have learnt that time and expectations are two very dangerous things to try to predict and manage. Now we are all learning that with COVID-19 too.
When life gets too much we can retreat into familiar places and stories that give us comfort, and which feel better than the place that we are currently living in. Escaping into a book is the perfect balm for a tired soul in need of rest from yourself, your life and the world.
Being in pain or managing a chronic condition while also having an external crisis play out in front of you, can really add to the stress and therefore the symptoms that you manage. From my own experiences, here are my suggestions for managing both a chronic condition and an external crisis.
The Chinese use two brush strokes to write the word ‘crisis’. One brush stroke stands for danger; the other for opportunity. In a crisis, be aware of the danger – but recognise the opportunity. – John F. Kennedy
We never know when something could go wrong or we need additional help, and the best way to manage this is to be prepared and have a plan. Here are my tips to cover all bases!
In order to love who you are, you cannot hate the experiences that shaped you. – Andrea Dykstra
Knowing who and when to share your story with takes skill and awareness, and can be incredibly supportive and rewarding.
Once we have taken care of the immediate issues, diving into medical investigations can make it hard to work out if you are making progress.
How do we navigate it?
How do we understand it?
How do we explain it?
How do we accept it?
We all just want to be seen and heard for how we really are.
Clothes help us to transition into different states of being and doing, and can transform your mindset and mood in an instant.
One of the most transformative things that I have implemented in my medical journey was to start a daily diary.
As the saying goes, you can’t pour from an empty cup.
If you have ever experienced a crisis, a medical condition, a major change or been impacted by the current COVID-19 situation, you may probably have noticed the secondary effect of a level of uncertainty and discomfort. I wish I could wave a magic wand and help it disappear for you. Instead I have hard truths and some hard work to practice, which is well worth the effort for your mental and emotional well-being and for those around you.
Take heart, you will be ok.
We are all going through a time of big change.
I have wanted to support the chronic medical conditions community for some time and highlight the accomplishments and challenges that come with managing chronic conditions and the lifestyle that usually comes with a new normal.