This short sentence has stayed with me for years, it is stuck to my fridge as a reminder, and has become a guiding light in my stress management and decision making processes.
It’s International Day of Persons with Disability tomorrow, Friday 3rd December! Today I am sharing one of the moving quotes by Robin M. Eames from the anthology Growing Up Disabled in Australia.
As someone who has had to take extended periods of time away from the workplace, social and community situations, it can be a mixed bag of emotions when you are returning back into those spaces and amongst a lot of people. I’m sharing my thoughts on the reintroduction process today on the blog.
What do we do when the days all start to feel the same? How do we get ourselves out of a funk?
The best decision I have made for my health in years.
The time has come for me to press pause on the blog and take some time out to recharge my creative batteries.
Growing Up Disabled in Australia is a diverse anthology of the very best kind!
There have been a few things that I predicted, a few surprises along the way and a whole lot of learning.
A few words on driving, medical conditions and compromises.
May 12th is International Awareness Day for Chronic Immunological and Neurological Diseases (CIND) so here are a few words today in honour of the Lady with the Lamp.
In the second instalment of Take Control Of What You Can Series, I’m talking about regaining control of an environment to make you feel happier, healthier and safer.
Imagine this: someone close to you is going through a crisis and you don’t want to say the wrong things to them, however you have your own worries that you need to release through conversation. Who is the best person for you to talk to?
It’s the mundane everyday tasks that can give us the most perspective.
Learning to become fluent with words that accurately describe the pain and symptoms you are feeling is one of the most helpful things you can do to create a positive working relationship and understanding between yourself and your medical professionals.
We have all been in that place where something awful happens to someone and we are petrified of saying the wrong thing or not sure how to help. This is where the book ‘There Is No Good Card For This: What to Say and Do When Life is Scary, Awful and Unfair to People You Love’ by Emily McDowell and Kelsey Crowe comes in to save us!
I hope you have people and places where you don’t have to be strong too.
As soon as things get tough, you know you are going to need a few people to lean on. Who is on your team?
One thing I am constantly being asked is ‘what do I do all day if I am not working?’. Here is a little insight into my daily life and health management.
So you might not be much of a talker or know much about the medical world, but you want to help someone close to you? Here are a few practical ways to help someone with a chronic condition!
We are all aware of the mental health campaigns urging us to check in with each other, to start the conversation about someone’s mental health… but do you know how to support and guide them to resources if they say “No, I’m not ok”?. What are the next steps to take? Do you feel confident to have that discussion? Read more about my experience completing the Mental Health First Aid course.
When chronic conditions start to infiltrate every part of your life, you can feel like you are losing control or have others make all the choices for you. This series is about regaining a bit of control in areas that are manageable and make a huge difference – starting with the online world! Read about how I changed my online experience from taking me for a ride to taking the wheel!
Most of the time we don’t even realise that we are holding our breath when we are in pain. So when we are in the moment of pain and waiting for it to pass or ease, here are some neat little breathing meditation practices to try to relax our bodies.
I started the year with ideas and dreams for a project – but the year had other plans for me and my project.
It’s pretty hard to look back on a disappointing year, when nothing went your way and felt like a struggle to get through. From my experience from many tough years, here are a few things to keep in mind when reviewing the year.
2020 has been a strange year and a lot of us have struggled with the notion that our perception of time has changed. This is a very similar experience to when you have a chronic medical condition. Read more here!
Buying presents for people with chronic conditions can sometimes be a little tricky. Here are some suggestions that are fail-safe to bring your loved ones some joy and comfort this festive season!
Anyone with a chronic condition can tell you that going to celebrations or large events can be quite challenging and exhausting. With some careful planning and sensible self care, we can make the event much more enjoyable and last longer than Cinderella before the carriage turns into a pumpkin!
So often we can fall into the trap of assuming that someone is naturally gifted with skills, habits and traits. But what if they weren’t born like that and worked hard to be that person?
I have learnt that time and expectations are two very dangerous things to try to predict and manage. Now we are all learning that with COVID-19 too.
I’ve had a lot of medical appointments over the years and I have learnt a few tips from my experiences and from the medical practitioners and their staff.
Being in pain or managing a chronic condition while also having an external crisis play out in front of you, can really add to the stress and therefore the symptoms that you manage. From my own experiences, here are my suggestions for managing both a chronic condition and an external crisis.
We never know when something could go wrong or we need additional help, and the best way to manage this is to be prepared and have a plan. Here are my tips to cover all bases!
Nurturing ourselves with familiar and enriching activities that restore our energy is what keeps us afloat when everything around us is uncertain, rough and stormy.
Knowing who and when to share your story with takes skill and awareness, and can be incredibly supportive and rewarding.
Once we have taken care of the immediate issues, diving into medical investigations can make it hard to work out if you are making progress.
Some days you just need something to do that is quiet and not too taxing on your energy levels.
Finally getting out of your house only to suffer from motion sickness? Here are my tried and true tips to manage it.
The pharmacist is probably going to be a frequent person you’ll see when managing a medical condition, so it is reassuring to get to know them and their services.
How do we navigate it?
How do we understand it?
How do we explain it?
How do we accept it?
With a little experimenting, rituals and preparation, you can master quality rest time.
We all just want to be seen and heard for how we really are.
Don’t wait and miss the opportunity for a quality rest break.
One of the most transformative things that I have implemented in my medical journey was to start a daily diary.
If you have ever experienced a crisis, a medical condition, a major change or been impacted by the current COVID-19 situation, you may probably have noticed the secondary effect of a level of uncertainty and discomfort. I wish I could wave a magic wand and help it disappear for you. Instead I have hard truths and some hard work to practice, which is well worth the effort for your mental and emotional well-being and for those around you.
Determining what is possible for me to do and learning to work with medical challenges and not against them.
I have wanted to support the chronic medical conditions community for some time and highlight the accomplishments and challenges that come with managing chronic conditions and the lifestyle that usually comes with a new normal.
Hello there, I’m Hannah. Let me introduce myself.